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发表于 2009-6-1 16:08
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今夜无眠 and 西子妈妈, sorry for not getting in touch with you lately. My daughter recently developed new and more frequently seizure activities. She is having 3-4 seizures per day now; and the current medication can only help control her conditions to a certain degree. The new medicine doctors are trying to put her on has 30% of permenant side-effect on her vision. Given 1 in million odds, my husband and I had experienced with our daughter, we really don't have faith in our luck. My challenge is not about taking care her 24/7; it's about not knowing what my daughter is facing every day. It's quite helpless sometime and it takes a while to gather strengths and move on. % l, E# N+ j5 G
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Do I really believe God or mircale? I don't know. Do I believe in myself or my husband? I am not certain. But I surely believe in my daughter. Since her well-being is fully depended on me and my husband, we certainly have no excuses to be weak.
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' d# K* M) u) j' v' I- oEverytime running into neighbours, they will be delighted to meet her. "Cute baby! Helloooooo..." "What's that tube for? Are they going to take away that tube anytime soon?": ^- L, v3 V: P2 o
1 t8 g) B4 q5 g3 X8 m1 r+ H9 U, u"She is per-mature. That's feeding tube, doctors will take it out one day! She is fine!" My husband always answers with a huge pride smile on the face. I used to hate this false answer regarding to my daughter's condition; slowly I realized it is the best answer available. Today, I will answer with the same smile - "She is doing very well and she is a good baby!" What a wonderful world...... |
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楼主: julia.ganesh
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发表于 2009-5-10 19:13
